Wednesday, September 30, 2009

A Powerful Blessing

Sofie received a powerful blessing from her Grandpa Turner last night. Without crossing sacred boundaries, we wish to share that her Grandpa felt impressed to tell Sofie that she will fully recover. We thank Heavenly Father for this wonderful gift and comfort, and for the faith of righteous men in Sofie's life.

I Am Not My Hair

Sofie has embraced this song which was introduced to her by a close friend. We think it's beautiful, just like our Sofie--who, by the way, has fabulous hair and will have again once we get through this powerful ordeal. (If you want to take a listen, which is highly encouraged, you may wish to pause the music play list embedded at the bottom of the page. Otherwise both play simultaneously, and that sucks, despite each song on its own being the essence of all things groovy.)

Tuesday, September 29, 2009

Sofie and Brooke

Brooke and Sofie (Bros)

Travel Day

Today is our big travel day, just me, Sofie, and her little siamese twin, Brookie Fallon. Jeff and the girls will join us when Sydnie gets back from her Teton Science School trip. We decided to drive so I can leave my pilot in Utah for the duration. It will be a fun road trip with the twins. I'll have to post a picture of Sofie's best friend and attending angel. She will be right there in the hospital with us all week. They call each other "bros" and thats just what they are!! We are surrounded by love and the faith and prayers of many, so here we go on our new journey..... thank-you so much!!

Saturday, September 26, 2009

Best time of the day...

Wait on the Lord, be of good courage and He shall strengthen thy heart. Wait, I say, on the Lord. Psalm 27:14

Friday, September 25, 2009

Primary's called. We will be leaving town on Tuesday. Sofie will begin a process of tests beginning at 10 am on Wednesday. MRI, bone scan, echocardiogram, hearing test, and a minor surgery to insert central line. Chemo starts on Thursday. 5 days of chemo. She hopes to have a blast tonite... theres something special happening with one of her friends that she's been invited to. Tomorrow night... closing night of Grease, her dance teacher is playing the lead so we are excited!! Sunday we will be in church!! Bonnie

Early AM

Beareth all things, believeth all things, hopeth all things, endureth all things.....
1 Corinthians 13:7

Thursday, September 24, 2009

Dispelling confusion

Blogs are so good for getting out firsthand info! So here goes. Sofie has osteo sarcoma, a tumor below her left knee. Mid August she started coming home from the Steakhouse with soreness and swelling. We began to ice and elevate! As she showed no improvement we went to a doc down in Ut where she was spose to be dancing. Her x-ray showed her little info. She referred us back to Jackson. We saw Dr. Khory (love him). He also had difficulty getting information from original x-ray. He sent us to radiology at hospital. After looking at 2nd x-ray, he was somewhat troubled by it and made an appt for MRI the next day. After reading the MRI he referred us to Huntsman for a 2nd reading of MRI. He knew what it was and so did we.... that was an emotional day. Luckily we got in the VERY next day at Huntsman. Dr. Jones read the MRI and told us what it was before sof even got the biopsy or pathology report back. The next day we got the biopsy. Everything happened fast. But what we know is that 20 years ago, doctors would often just take the leg. Times have changed. She will be in chemo 3ish months. Then Dr. Jones will go in and get the cancer out, replacing much of her tibia with steel. He will also replace her knee. After surgery, Sof will have to go back on chemo for approx 5 more months so that the cancer will have less a chance of coming back. Because osteo sarcoma likes to show up in the lungs, the chemo will have to be systemic, treating her whole body. Sof will definitely lose her hair and become very sick. Children and young adults under the age of 30 are stronger at fighting the chemo process. There is a marked difference once you are over 30. If there is such thing as being a good candidate for chemo, Sof would fit that profile. She is strong, fit and positive. She was online looking for hair today something you would never picture your teen-age daughter doing, ever, but like I say, she is just rolling with this and feeling your love. Please leave any questions you may have by clicking "comment"

First news from chemo doctor at Primary Childrens

Its 11:10 am on Thursday.... finally got the call from Sofie's chemo doctor. Her name is Dr. Wright. The reason why its taking time for them to get back with us is that they still need to schedule another MRI (the first one was just of her knee) so they can see her entire tibia. Then she has to get a bone scan to make sure there is no more cancer in any other of her bones. They can't conjecture on her chance of cure until they have that information... I guess that was a little blow as we didn't realize they needed even more information to give us a definitive prognosis. They will set up those procedures with radiology in Primary's looks like the beginning of next week. We will have an exact date tomorrow. Sofie decided not to go to school today. I huess there s a lot of illness going on that she cant be exposed to so she is working online today. Thanks for your love and prayers. Bonnie
My son, peace be unto thy soul: thine adversities and thine afflictions shall be but a small moment, and then if thou endure it well, God shall exalt thee on high, thou shalt triumph over all thy foes.
D&C 121:7-8

Wednesday, September 23, 2009

thoughts from a father in utah

wow, everybody. so here we are. how to talk about our angel...

as dr jones confirmed the powerful news last thursday, he turned to sofie and said, "this is life changing." i kept hearing the word "life," "life," "life," as we absorbed the news. her dear mother, her wonderful mother wanting so to comfort. our dearest sofie processing the news with complete equanimity--rightly emotional, open, and still somehow more powerful than the news. that is our sofie. completely unselfconscious, completely in the moment, completely alive, completely herself. that is her strength.

i adore you, sofie. i've said for years you and joe came to save me, but this is way beyond the call of duty. statistically you are now quantified as one in three hundred thousand, but we all know you are one in a million.

i think of my favorite pictures of you as a little one: in the first you are lying on a carpeted floor, eyes closed in mock sleep, and in the next eyes wide open and full of perfect mischief. thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, forever. and forgive me for embarrassing you.

first blog

Just getting acquainted with this blogging business!! This this the first blog. Just short and sweet. Sofie is having an awesome day. First day back to school with her new schedule! She goes to school at 10:30, goes to 4th, lunch, 5th, and 6th. Core classes are online so the only classes she takes at school are spanish 4, psych and art. Perfect! Still waiting to find out when she checks into Primary Childrens. But for now, really enjoying life as normal!! Well, you know, kinda normal..... Sofie hates exclamation points so I'll try not to use too many, yeah?