Thursday, September 24, 2009

Dispelling confusion

Blogs are so good for getting out firsthand info! So here goes. Sofie has osteo sarcoma, a tumor below her left knee. Mid August she started coming home from the Steakhouse with soreness and swelling. We began to ice and elevate! As she showed no improvement we went to a doc down in Ut where she was spose to be dancing. Her x-ray showed her little info. She referred us back to Jackson. We saw Dr. Khory (love him). He also had difficulty getting information from original x-ray. He sent us to radiology at hospital. After looking at 2nd x-ray, he was somewhat troubled by it and made an appt for MRI the next day. After reading the MRI he referred us to Huntsman for a 2nd reading of MRI. He knew what it was and so did we.... that was an emotional day. Luckily we got in the VERY next day at Huntsman. Dr. Jones read the MRI and told us what it was before sof even got the biopsy or pathology report back. The next day we got the biopsy. Everything happened fast. But what we know is that 20 years ago, doctors would often just take the leg. Times have changed. She will be in chemo 3ish months. Then Dr. Jones will go in and get the cancer out, replacing much of her tibia with steel. He will also replace her knee. After surgery, Sof will have to go back on chemo for approx 5 more months so that the cancer will have less a chance of coming back. Because osteo sarcoma likes to show up in the lungs, the chemo will have to be systemic, treating her whole body. Sof will definitely lose her hair and become very sick. Children and young adults under the age of 30 are stronger at fighting the chemo process. There is a marked difference once you are over 30. If there is such thing as being a good candidate for chemo, Sof would fit that profile. She is strong, fit and positive. She was online looking for hair today something you would never picture your teen-age daughter doing, ever, but like I say, she is just rolling with this and feeling your love. Please leave any questions you may have by clicking "comment"

4 comments:

  1. Thank you for starting this blog!... I'm sitting here reading this blog with lots of tears. Sofie, I've always had a hard time expressing how much I love you. The time I spent with you when you were little are some of my fondest memories. Every time I see you, I can't believe how beautiful and grown up and good and kind you are. Know that we are all behind you and praying for you. love you, and hope to see you soon.

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  2. Hi Sof, when Ashleigh was 16 our friends' baby had cancer and to show her support, Ashleigh shaved her head and donated her hair to Locks of Love. Who knows, maybe the hair you choose will be Ashleigh's!!! I'm looking for the pictures (maybe they were in the photos Clark gave you?) and when I find them, I'll post them. Btw...our friends' baby is cancer free eight years later! Yay... Love you girl...keep up that positive vibe. I'm sure your name is on numerous prayer rolls at temples around the globe and I called it in to the Rexburg Temple. Our stake will be attending sessions in force on Saturday so we will all be praying for YOU. The power of prayer is real...Believe. All my love, Kristen Allan

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  4. Thanks Bonnie for volunteering added details.

    In preparation for the Sofisticated leg of metal, I have researched the following personal sound effect: http://tinyurl.com/yewensg

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